Lyme Disease

Gardening is wonderful, it allows you get outside, get exercise and raise your own food.  However there is a down side, bugs.  This summer me and my daughter both got Lyme Disease.

medical illustration of Erythema migrans This is a picture from the CDC website of a bulls eye rash.

I never saw the tick on me, I just noticed the bull-eye rash on my leg.  I also had secondary rashes spread to my torso.  At first I thought that I was bit by a spider.  I went to Patient First when the “spider bite” spread to twice its original size.  The doctor at Patient First referred me to a Doctor at Johns Hopkins that is doing a study on patient’s with Lyme Disease.

The study follows me for one year, they draw blood a couple times, do cognitive testing and skin biopsies.  My blood test was positive for Lyme.

After I started my antibiotic my head aches and body aches started to get worse.  One morning close to the end of my three week treatment I woke up with numbness down my right side and stiffness in my neck.  My doctor sent me to the emergency room to rule out meningitis.  The only way to test for meningitis is to preform a spinal tap and test the spinal fluid.  I did not have meningitis but was admitting into the hospital and was put on IV antibiotics for the remainder of my three week antibiotic treatment. I ended up leaking spinal fluid after two spinal taps and had a post spinal tap head ache.  Eventually they did a blood patch to stop the leaking and I was discharged.

The Lyme bacteria affects everyone differently, some people who have Lyme Disease never have a rash or any symptoms until it is too late.

My daughter was bit by a tick the week before I was, we actually saw the tick on her and removed it.  She never had a rash, or a fever.  Her only symptoms were that she had a headache and joint pain that came and went.  Her blood test was negative.  However because her symptoms were not going away, we decided to start her on the three weeks of antibiotics.   So far so good and after three days of medication she has stopped complaining about the headaches and joint pain.

I have been asked many times what my advice is for someone who has a tick bite.  I would say to go to the doctor.  Make sure you document when you pulled off the tick and when your symptoms started.  Even though the blood test is not as accurate as doctors would like, it is better than nothing.  If you have a head ache or any symptom that is just not explained, I would have a Lyme Test done.  It is better to be safe than sorry.  That was the approach we took with our daughter.  We would rather have medicated her for three weeks and known we did everything for her we could, than her have life changing symptoms a couple years from now that can’t be treated.

I hate bug spray, but it is needed when you live in the North East and like to be outside.  I also wear gardening clothes that are long pants and a long sleeve shirt. I refuse to stop gardening, but I know I never want to have Lyme Disease again.

I have learned from my doctor that there is a spike in Lyme Disease in both the spring and the fall, just because the weather is getting cooler does not mean the threat is gone.  Please continue to be aware of ticks, where bug stray and check you and your family.

Safe gardening everyone!

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