Repost from old blog enjoy!
It is 1030 at night. My son is still awake because he is so pumped up on steroids and stimulants he can hardly sit still. His Celiac Disease not only attacks his intestines but it also attacks his lungs. He gets symptoms similar to bronchitis. His lungs fill up with fluid and the vessels in his lungs swell, restricting his airway. When it happens he has to be on inhaled steroids, and albuterol. The side effect of the medication is he is wired.
All of this happened this time because someone somewhere thought it would be a good idea to add wheat to a chicken breast. Why does there have to be wheat in a plain grilled chicken breast? We went out to a restaurant on Friday and my little buddy ordered grilled chicken on a stick. Within 30 minutes he was sick.
As a Mom I sit here helpless. I have no magic wand to make it go away. As much as I want to, I cannot “bibi-bopi-bo”, as my daughter would say, and make everything gluten free. I cannot get rid of Celiac Disease. There is no cure. There is no pill or injection or make them better. When they are exposed to gluten they suffer for days, sometimes even weeks. They suffer by not being able to eat, or they have diarrhea, vomiting, and immense stomach cramping and bloating. Nothing comforts them. On top of the stomach symptoms, my buddy boy cannot breath. He has to watch his friends run around because his lungs cannot handle the exercise. And that is just the symptoms of my son. I could go on to describe what my daughter and my husband go through, but I will save that for another post.
I research every food that my family comes in contact with. I read labels until I go cross-eyed and my babies still get sick. I only can control my own actions. So my actions will be prayer. I pray that God continue to use me to raise awareness against this silent, painful disease. I ask for strength to keep fighting even when I do not want to any more.
If you take nothing else away from my writing, please take away a piece of awareness. Please know that there are people that are sensitive to gluten. If you eat gluten, please wash your hands before touching my kids or other people with food sensitivities. Please vote to have food and medication labels list allergens such as gluten. This small protein is a huge part of my family’s life and most of the world does not even know what it is. Thank you for taking the time to become aware.